PWN4PWN has opened a narcolepsy registry in collaboration with Coordination of Rare Diseases at Sanford (CoRDS) to connect as many patients and researchers as possible to advance treatment for narcolepsy. The registry is free for patients to join and for researchers to access. Participating [...]
The nonprofit organization Project Sleep recently introduced The Sleep Helpline™, a national helpline to guide you through sleep-related challenges. Let's explore what the Sleep Helpline offers and how it can assist you. What is the Sleep Helpline? The Sleep Helpline is a professionally staffed [...]
Wake Up Narcolepsy presented with the Mayo Clinic, Rochester, MN will host the 2023 Wake Up Narcolepsy National Conference and Patient Summit, Saturday, September 9, 2023. View Flyer Learn More
The Hypersomnia Foundation is partnering with Haymarket Medical Education on a free idiopathic hypersomnia CME dinner symposium at SLEEP 2022! Sunday, June 5, 6:30-8:30 pm. See www.mycme.com/Hypersomnia2022 for details and registration. Jointly provided by Haymarket Medical Education and the Hypersomnia Foundation.
The Hypersomnia Foundation conference will be in Charlotte, NC, June 3-5 just prior to SLEEP 2022! See www.hypersomniafoundation.org/conference-2022 for details and registration. Virtual attendance is free for everyone and includes access to session recordings for 3 months, so please inform your patients with IH, narcolepsy [...]
The American Academy of Sleep Medicine (AASM) is working to develop a new clinical practice guideline for the treatment of central sleep apnea (CSA) in adult patients. We are looking for patients, or a caregiver to someone with CSA, to share their perspectives regarding [...]
The American Academy of Sleep Medicine (AASM) is currently working to develop a new clinical practice guideline on the treatment of central sleep apnea in adult patients. We are seeking individuals who would be interested in contributing to this project as a volunteer patient [...]
Imagine that you’re taking a medication or using a medical device to treat a sleep disorder. Then something bad happens: The treatment fails to work, or you end up in the hospital. You talk to your medical provider about your treatment options. But what [...]
Have you ever searched for advice on getting comfortable using a CPAP machine? Have you Googled ways to help your child manage a sleep disorder? You’re not alone. Many people look for resources about sleep disorders that can’t always be found at the doctor’s [...]
June features the shortest nights of the year, but for those living with chronic insomnia, every night is long. That’s why the American Academy of Sleep Medicine (AASM) and Society of Behavioral Sleep Medicine (SBSM) are working to raise awareness of the disease with [...]
