Patient Advocacy

26 01, 2024

New helpline provides support and resources for people with sleep issues

2024-02-23T19:30:09+00:00January 26, 2024|Patient Advocacy, Poor Sleep, Sleep Disorders|

The nonprofit organization Project Sleep recently introduced The Sleep Helpline™, a national helpline to guide you through sleep-related challenges. Let's explore what the Sleep Helpline offers and how it can assist you. What is the Sleep Helpline? The Sleep Helpline is a professionally staffed [...]

29 06, 2023

Wake Up Narcolepsy to host national conference and patient summit

2023-06-29T19:54:24+00:00June 29, 2023|Patient Advocacy|

Wake Up Narcolepsy presented with the Mayo Clinic, Rochester, MN will host the 2023 Wake Up Narcolepsy National Conference and Patient Summit, Saturday, September 9, 2023. View Flyer Learn More

24 05, 2022

Complimentary accredited continuing education dinner symposium

2022-05-24T20:39:10+00:00May 24, 2022|Patient Advocacy|

The Hypersomnia Foundation is partnering with Haymarket Medical Education on a free idiopathic hypersomnia CME dinner symposium at SLEEP 2022! Sunday, June 5, 6:30-8:30 pm. See www.mycme.com/Hypersomnia2022 for details and registration. Jointly provided by Haymarket Medical Education and the Hypersomnia Foundation.

24 05, 2022

Hypersomnia Foundation #BeyondSleepy Conference 2022

2022-05-24T15:09:07+00:00May 24, 2022|Patient Advocacy|

The Hypersomnia Foundation conference will be in Charlotte, NC, June 3-5 just prior to SLEEP 2022! See www.hypersomniafoundation.org/conference-2022 for details and registration. Virtual attendance is free for everyone and includes access to session recordings for 3 months, so please inform your patients with IH, narcolepsy [...]

12 04, 2022

Call for patients with central sleep apnea

2022-06-06T22:27:26+00:00April 12, 2022|Patient Advocacy, Sleep Apnea|

The American Academy of Sleep Medicine (AASM) is working to develop a new clinical practice guideline for the treatment of central sleep apnea (CSA) in adult patients. We are looking for patients, or a caregiver to someone with CSA, to share their perspectives regarding [...]

1 02, 2022

Call for Volunteers for clinical practice guideline research

2022-03-14T16:20:12+00:00February 1, 2022|Patient Advocacy|

The American Academy of Sleep Medicine (AASM) is currently working to develop a new clinical practice guideline on the treatment of central sleep apnea in adult patients. We are seeking individuals who would be interested in contributing to this project as a volunteer patient [...]

28 01, 2022

FDA safety program allows you to report problems with drugs, medical devices

2023-01-18T17:16:24+00:00January 28, 2022|Patient Advocacy, Safety|

Imagine that you’re taking a medication or using a medical device to treat a sleep disorder. Then something bad happens:  The treatment fails to work, or you end up in the hospital. You talk to your medical provider about your treatment options. But what [...]

10 01, 2022

Patient organizations team up to help people with sleep disorders

2023-02-17T14:51:31+00:00January 10, 2022|Patient Advocacy|

Have you ever searched for advice on getting comfortable using a CPAP machine? Have you Googled ways to help your child manage a sleep disorder? You’re not alone. Many people look for resources about sleep disorders that can’t always be found at the doctor’s [...]

16 06, 2021

Insomnia Awareness Night sheds light on sleeplessness

2023-01-18T17:22:55+00:00June 16, 2021|Insomnia, Patient Advocacy, Poor Sleep|

June features the shortest nights of the year, but for those living with chronic insomnia, every night is long. That’s why the American Academy of Sleep Medicine (AASM) and Society of Behavioral Sleep Medicine (SBSM) are working to raise awareness of the disease with [...]

19 09, 2020

Resolution 1103 supports the designation of National Student Sleep Health Week

2023-01-19T17:57:10+00:00September 19, 2020|Children, Parenting, Patient Advocacy, School, Teens|

On Sept. 11, 2020, Democratic Rep. Zoe Lofgren of California introduced House Resolution 1103 in the U.S. House of Representatives. Developed by the American Academy of Sleep Medicine, the resolution designates the third week of September as National Student Sleep Health Week. Republican Rep. [...]

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